One of the good things about living life in a wheelchair is that I don’t have to spend any money on gas. I am not driven a car in about seven years and to tell you the truth I wasn’t really crazy about driving in the first place. But what I really I do miss, however, is getting to the place I want to go, when I want to go there and how I want to get there.
The have to rely on someone else really really sucks. I am, of course, blessed to be in an area where there is public transportation for wheelchair ridden and disabled people. The Para-transit bus arrangements have to be made at least a day in advance and then generally the bus comes pretty much on time and usually you have to take a circuitous route and eventually get there relatively intact. you just never know how your ride is going to go.
I guess like most of the general population there is quite a mixture of bus driver personalities. You would think that one of the top criteria to be a driver for disabled people is strength, patience, and being a people person. But then again you would be wrong… I’ve had a couple of bus drivers who really would be better off being a prison guard in a high-security institution or perhaps one who collects snake venom for antibodies.
I had one bus driver, bless his heart, who was so obese he couldn’t even lean over to connect the safety chains on my wheelchair. It took quite a bit of time and I was very uncomfortable not only for him but also for me but he finally got her done. by the time he got that part done was sweating so profusely I thought he was going to have a heart attack and I was going to have to be the one to drive him to the nearest hospital! I really did feel bad for him; he seems so terribly uncomfortable even getting in and out of his driver seat.
I would so much rather be an enabled person and pay those exorbitant gas prices! I would do it willingly and with a smile. Driving really is a privilege. It’s like everything in life I guess. You don’t know what you’ve got until you lose it. Oh, How I would love to have that back!
Don’t forget to check out the book that I have written Potty Mouth now for sale on Amazon, Barnes & Noble, Author House and other sellers of books!
Famous painting by Pablo Picasso Head of a Woman. 1907. Oil on canvas. Barnes Foundation, Lincoln University, Merion, PA, USA
My book Potty Mouth is now live on Amazon! http://www.amazon.com/books-used-books-textbooks/b?ie=UTF8&node=283155 Holy Mother of God! Finally. It first went on sale on World MS Day. Coincidence? I don’t think so! I am so excited. The e-book will not be for sale for 3 weeks or so. Don’t know why.. not up to me. My marketing director (I can’t do this all alone) has given me an assignment:
My question for today…How has multiple sclerosis affected your relationships with your family, your friends, your husband and your children?
I don’t even know where to begin! I am in a serious mind fog–I can’t think straight, I can’t even see straight. so I will to start from the beginning. My relationship with myself.
MS has affected me since I was in my late teens so of course I have changed and grown so much over the years. when you have MS and start life in a wheelchair, as I have, you begin to seep into yourself. I have always been a reader and I started to read all kinds of self-help books, spiritual books, inspirational books and anything to help my spirit grow. Or rather to help me find my spiritual self. MS has helped me to get closer to God. So in that sense MS has made me much stronger; a more empathetic person and someone who sees a little bit of good in everyone.
I didn’t wake up one day with an epiphany. I did not see the form of Jesus on a bagel or have a dream where God spoke to me of the meaning of life. Spiritual growth is a long and painful path that goes on until our very last breath on earth and what incredible lessons I learned from the hardships of multiple sclerosis. One of those lessons is how to love myself in spite of my rickety, misshapen body that won’t listen to me when I tell it to, yell it to, scream and cry and beg it to.
And so the lessons I learned help me get on with my MS life.
MS has surely affected my 2 grown children. They’ve known I have the beast from the beginning. The stumbling, falling, trembling etc. They knows the external struggle on the outside only and do my damnedest to keep as much from them as possible, being the mom and all.
My son, Ryan lives and works in Houston and isn’t here for the day to day life of an MS sufferer. My daughter, Lara is my angel sent from heaven. I live with her and we have learned how to be kind to one another and MS has brought us so close. She learns much from me. and I from her.
Since I started to write Potty Mouth she has gained such respect for me and is very proud. When she first started to read the bo0ok she was so afraid that she would not like it and she was terrified about how she would handle it. Lo and behold she loves Potty Mouth even though it was tough to read some of the heartbreaking things she never knew. And so MS has brought me much closer to my children.
That’s all I will write about relationships today. Next will be to tackle my ex-husband.It’s a really tough one…
All of Potty Mouth is my story, my relationships and how I have coped and how I carry on with what I have learned.